Thursday, 18 August 2016

Jeans for Genes

Jeans for Genes Day/Genetic Disorders UK Grant Programme will open shortly to groups and charities that care for children aged 18 and under who are affected by a genetic disorder. Genetic disorders include colour blindness, Down syndrome and sickle-cell disease. A full list can be foundHERE.
The Programme will give charitable groups the opportunity to secure funding for a project that will make a tangible difference to the lives of people with a genetic disorder.
The maximum grant available for 2017 is £5,000. Jeans for Genes may decide to award the full grant requested or offer a lower amount.
Applications will be accepted from:
o Patient groups working on behalf of children and families affected by a genetic disorder if they are endorsed by a medical professional with recognised expertise in the disorder;
o Charities and patient groups that support both adults and children as long as the focus of the grant is on children;
o Special needs organisations, such as special schools or playgroups that provide services to children with a wide range of conditions as long as children affected by genetic disorders are the main beneficiaries of the project.
Organisations that care for children with a range of health conditions will need to provide detail on the number of children with a genetic disorder and the types of disorders they have in order for their application to meet the eligibility criteria.
Projects must satisfy the following criteria:
o The project must benefit children and yound people aged 18 years or under affected by genetic disorders;
o The proposed project is of one year’s duration or less;
o The proposed project will take place in the UK and/or will benefit UK families;
o The project’s activities are tangible and identifiable;
o The size of the Jeans for Genes grant can make an acknowledgeable impact on the project;
o The charity or support group has a child protection policy in place (if applicable).
Funding is not available for:
o Individuals;
o Laboratory-based research (however, applications will be accepted for clinical research projects as long as the project has been independently peer reviewed and a copy of the review findings are included with the application);
o Charities or support groups who received a grant the previous year;
o Autism;
o Dyslexia;
o Diabetes;
o Cancer (except for those types of cancer that are caused by a genetic disorder).
Successful applicants must agree to:
o Provide the contact details of three families who would be willing to share their story as a case study to be used in Genetic Disorders UK/Jeans for Genes Day publications and the media;
o Promote Jeans for Genes Day in the organisation’s communications during the six months leading up to Jeans for Genes Day 2017, including in newsletters and social media;
o Display the ‘Supported by Jeans for Genes Day/Genetic Disorders UK’ logo on the front page of the organisation’s website at least from 1 June 2017 until the completion of the project;
o Acknowledge the ‘funds raised on Jeans for Genes Day’ as the source of funding for the project; and
o Complete an End of Grant Report within three months of the project ending.
The programme will open to applications on Thursday 1st September and has a deadline of Friday 30th September 2016.
Application forms and guidelines are available from the Charity's website
Completed application forms must be returned via email. A signed copy of the completed application must also be sent by post.
Contact details for Jeans for Genes are:
Genetic Disorders UK/Jeans for Genes
199A Victoria Street
London SW1E 5NE
Tel: 0800 987 8987

(Source: GRIN)

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